‘Little People, Big World’: Tori Roloff Reflects on Getting ‘Extremely Emotional’ After Learning Her Daughter Had Dwarfism

Tori Roloff is opening up about how she felt when she learned daughter Lilah would be a little person. On the April 7 episode of Little People, Big World, viewers saw her reaction when she and husband Zach Roloff were told during an ultrasound appointment that their child likely had dwarfism. Now, in an Instagram post, she’s sharing more about her emotional response to the news. 

Tori Roloff says she got ‘extremely emotional’ when she learned about Lilah’s condition

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Social media can be such a fun place. I try all the time to make it positive and uplifting for others. Social media can also be a place where emotions run high. I tend to be an extremely empathetic person. I can get really anxious reading others stories especially when it comes to kids. I think I tend to deflect my own feelings because I know others are going through far worse things than I am. On tonight’s episode of LPBW I got extremely emotional about finding out Lilah had dwarfism. I remember that morning so clearly. I was on social media and found out that a friend of mine who was a month further along than I was at the time, was having issues with her pregnancy. That day she found out that she may never get to meet her baby. I remember being so absolutely heartbroken for her and her family. So when I went to our doctor appointment and found out Lilah has dwarfism I remember feeling guilty for being worried. Because at least my daughter was healthy. At least I would get to hold her. I would get to meet her. There are people out there that have way more difficult journeys than I do but that doesn’t discredit my own feelings. The same goes for everyone. It’s okay to feel whatever you’re going through. It was harder for me to process having a girl but to have a girl with dwarfism is new territory for me. It’s nerve wracking for sure but I can already tell Lilah Ray is one tough girlsie. I just want to say thank you for the positive support from tonight’s show. That’s why we do what we do. It’s sometimes hard for me to share so many emotions but if I can help one other person it’s all worth it. Feel what you’re feeling and never feel guilty for it-that’s what I’ve learned. I know my Lilah Ray is going to be just fine because she was made in His image- she’s just the way she’s meant to be. And ps- my friends baby was born healthy as can be!! #lilahrayroloff #zandtpartyoffour #lpbw

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Tori gave birth to her second child with Zach, a daughter named Lilah, in November 2019. Like the couple’s son Jackson, Lilah has achondroplasia

The news that their daughter would be a little person wasn’t a huge surprise to Tori and Zach. If one parent has the condition — as Zach does — there’s a 50% chance their child will as well. But Tori still had a hard time hearing the news, since she was worried about her baby and the challenges she might face as a little person. She says her feeling also triggered a sense of guilt because she knew other people faced much bigger challenges. 

“On tonight’s episode of LPBW I got extremely emotional about finding out Lilah had dwarfism,” Tori wrote on Instagram. She recalled that she’d just learned that morning that a friend who was pregnant was in danger of losing her baby. (The child was eventually born healthy.) 

“So when I went to our doctor appointment and found out Lilah has dwarfism I remember feeling guilty for being worried,” the mom of two explained. “Because at least my daughter was healthy. At least I would get to hold her. I would get to meet her.”

She thanked fans for their support 

Zack and Tori Roloff with son Jackson
Zach and Tori Roloff with son Jackson in an episode of Little People, Big World| TLC

Though Tori admitted to feeling guilty about being worried about her daughter, she eventually realized that her feelings were valid. 

“There are people out there that have way more difficult journeys than I do but that doesn’t discredit my own feelings,” she wrote. “It’s okay to feel whatever you’re going through. It was harder for me to process having a girl but to have a girl with dwarfism is new territory for me. It’s nerve wracking for sure but I can already tell Lilah Ray is one tough girlsie.”

She also thanked fans for their “positive support.” 

Tori’s sister-in-law Audrey Roloff and others respond

The response to Tori’s post was overwhelmingly positive. 

“I can so relate to these feelings,”  commented her sister-in-law Audrey Roloff, who is married to Zach’s brother Jeremy.

Caryn Chandler, her father-in-law Matt Roloff’s girlfriend, simply commented with two heart and two sun emojis. 

Many fans praised Tori for being so open about her feelings and honest about her struggles.

“Absolutely okay to feel all those things and it’s very wonderful how transparent you were,” one wrote. 

Read more: ‘LPBW’: Amy Roloff Just Gave an Update on How Her Controversial Son, Jacob Roloff, Is Doing

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